Home in Time for My Birthday update

May 11th, 2011

All the places Home in Time for My Birthday is and will be…Home in Time for My Birthday is making its way around Boston. In the past several months, Children’s Hospital Boston, Mass General Hospital for Children and Dana Farber Cancer Institute have been sharing it through resource rooms and distributing it to individual families. It has received positive feedback!

Home in Time for My Birthday has made its way into other states as well. It is being distributed among families and organizations in Rhode Island, New York as well as Las Vegas. I have read it to kindergarten, third and fourth grade classrooms.

Some up coming events include an author event in Newport, RI where I will be one of three local authors to share my book. I may also travel to Las Vegas to share my book with organizations and clinics.

I want to share this special resource with as many children and families has possible. Please let me know if there is an organization, clinic or individual family that would benefit.

New Article

August 11th, 2010

The RI Jewish Voice and Herald recently published an article about my book and me. You can find the article at the following link.

http://www.jvhri.org/the-news/community/429-offering-hope-to-ill-patients.html

Upcoming Article About My Book and Me

August 4th, 2010

I am so excited to announce that on Friday I will be featured in the Jewish Voice. The article will focus on Home in Time for My Birthday and the reason why I chose to write this special story.

Check back on Friday for a link to the article.

Today Show viewing of Home in Time for My Birthday

June 19th, 2010

On Wednesday morning, June 2, 2010 I woke up early in order to attend the Today Show. I stood outside along with hundreds of other people. With my book in one hand and a hand written sign, I am a Book Author, in the other I began to strategize.

With past experience, I knew that the opportunity to actually speak to Meredith or Matt, and actually hand them a copy, would be slim to none. At that moment, I was not even in the front row, but rather behind two tall people. Once they began filming, maybe two feet to my right, I tried to hold the book and sign up in order to at least get it on the screen, but that was not going to work either. Matt Lauer began shaking hands with fans. I held the book just below him, but he continued on. I was about to give up. Then Meredith began walking by. Again, I placed the book and sign in front of her, squeezing it through a space between two people. She took a look and looked up at me. I gave her a short description. “Can I have this?” she asked. I said “yes yes”. “I will get it to the right people.” she then responded. I did not know what to do. All I can say is that if you put your mind and energy towards something, you can achieve. I want to do all I can in order to distribute the book among other children and families. I also gave her my card. Please see attached photo.

CBTF Gala Continued

June 19th, 2010

The event was emotional in multiple ways. I listened as other families spoke about their past and/or ongoing experience as patients and family members. When listening to families whose prognosis has not been as positive as mine, I start questioning whether I am just a freak positive story. Am I the wrong one to share my story since I am not a true example of a brain tumor survivor? However, just as I begin to question myself, Bonnie Hunt grabs my hand. She introduces me to a couple whose daughter is continuing to fight through her diagnosis. During our conversation, Mom and Dad, expressed how important it is to meet someone like me. Home in Time for My Birthday is written to help these families through what can be a long process. A diagnosis does not need to take over “normal” life, but can become part of the day.

Children’s Brain Tumor Gala

June 19th, 2010

On June 1st, 2010, my parents, husband and I attended the Children’s Brain Tumor Foundation’s Gala. It was quite an honor to be there, both as a guest and volunteer, along with other patients, survivors, families and individuals leading the way in fundraising, research and support.

During the event, I had the opportunity to share my book, Home in Time for My Birthday, with celebrities such as Bonnie Hunt. Bonnie Hunt is very passionate about the organization and what is it striving to do for families dealing with the diagnosis of a brain tumor. She and I will be in touch as we continue to promote the book in order to get it into the hands of other children and families. I gave her a signed copy. Please see attached link for photos.

Meeting other children and families, and listening to their stories, is a reminder of the role Home in Time for My Birthday plays in dealing with a diagnosis, treatment and hospitalization.

Reading to a classroom – also a resource for schools

June 10th, 2010

Last week I had the opportunity to read Home in Time for My Birthday to Samantha Diamond’s 4th grade class. As they viewed each page on an overhead projector, the students listened as I read aloud.  The class then had the opportunity to ask questions. They asked questions about the writing process, the content and my experiences as a patient. It was a very positive experience for all!

Not only is Home in Time for My Birthday a positive tool for patients, and their families, dealing with a diagnosis, treatment and/or hospitalization, but it can also be used as a resource for schools. Classmates of a patient can gain a realistic perspective of what their friend is going through. They can discuss ways through which they can help and further understand the actual diagnosis. For example, during question and answer time, I explained that I needed to stay indoors during recess and that a classmate or two would often volunteer to keep me company.

Please see attached photo

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Introducing Home in Time for My Birthday

May 26th, 2010

Home in Time for My Birthday, a children’s book for children and their families facing a diagnosis, treatment and/or hospitalization is now complete. I just ordered the second order of books. I honored that the Brookline Public Library is interested in ordering a book for each of their four locations.

Hello world!

May 18th, 2010

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